Research with Older and Elderly Adults
By Janet Salmons
Dr. Salmons is the Research Community Manager for Methodspace.
Are you considering a study with participants who are older or elderly adults?
What methods will you use? Get some ideas and learn from the experience of other researchers. This multidisciplinary collection of open-access articles shows a wide range of methods used with senior participants and co-researchers.
Aw, S., Koh, G. C., Oh, Y. J., Wong, M. L., Vrijhoef, H. J., Harding, S. C., Geronimo, M. A. B., & Hildon, Z. J. (2021). Interacting with place and mapping community needs to context: Comparing and triangulating multiple geospatial-qualitative methods using the Focus–Expand–Compare approach. Methodological Innovations, 14(1). https://doi.org/10.1177/2059799120987772
Abstract. Geospatial-qualitative methods, which combine both observation and interpretative accounts during data collection through extended exposure and movement in place, have been increasingly used to explore “person–place” interactions and assess communities of place. Despite their increased use, there is a lack of reflexive discussion on how they differ in capturing person–place interactions and ways to combine them. Drawing on our experiences using three related methods—Photovoice, Walking through Spaces, and interactive Participatory Learning and Action exercise-led community focus groups—we compared the methodological advantages that each method brings to the construction of “place” and in exploring person–place interactions among the community of older adults living in a neighborhood of Singapore for a neighborhood assessment. We then illustrated how using a Focus–Expand–Compare approach for methodological triangulation can add value in generating greater depth and breadth of perspectives on a topic of interest explored for intervention development.
Benjamin-Thomas, T. E., Corrado, A. M., McGrath, C., Rudman, D. L., & Hand, C. (2018). Working Towards the Promise of Participatory Action Research: Learning From Ageing Research Exemplars. International Journal of Qualitative Methods. https://doi.org/10.1177/1609406918817953
Abstract. Within research addressing issues of social justice, there is a growing uptake of participatory action research (PAR) approaches that are ideally committed to equitable participation of community members in all phases of the research process in order to collaboratively enact social transformation. However, the utilization of such approaches has not always matched the ideal, with inconsistencies in how participation and action are incorporated. “Participation” within various research processes is displayed differently, with the involvement of community members varying from full participation to their involvement as simply participants for data collection. Similarly, “action” is varyingly enacted from researchers proposing research implications for policy and practice to the meaningful involvement of community members in facilitating social change. This inconsistency in how PAR is utilized, despite widespread publications outlining key principles and central tenets, suggests there are challenges preventing researchers from fully embracing and enacting the central tenets of equitable participation and social transformation. This article intends to provide one way forward, for scholars intending to more fully enact the central tenets of PAR, through critically discussing how, and to what extent, the principles of PAR were enacted within 14 key exemplars of PAR conducted with older adults. More specifically, we display and discuss key principles for enacting the full commitment of PAR, highlight a critical appraisal guide, critically analyze exemplars, and share strategies that researchers have used to address these commitments. The critical appraisal guide and associated research findings provide useful directions for researchers who desire to more fully embrace commitments and practices commensurate with enacting the promise of PAR for equitable collaboration and social transformation.
Dare, J., Wilkinson, C., Donovan, R., Lo, J., McDermott, M.-L., O’Sullivan, H., & Marquis, R. (2019). Guidance for Research on Social Isolation, Loneliness, and Participation Among Older People: Lessons From a Mixed Methods Study. International Journal of Qualitative Methods. https://doi.org/10.1177/1609406919872914
Abstract. This article provides methodological guidance to researchers wishing to develop collaborative research projects with local governments and other agencies, by describing the process adopted in a mixed methods study conducted in the City of Wanneroo (the City), a local government area in Perth, Western Australia. The study explored factors related to older people’s (60+ years) participation in community-based activities and links between their participation and levels of social isolation, loneliness, and social connectedness. The research incorporated four interrelated stages: (1) an audit of existing programs in the City and program participant characteristics; (2) focus groups with program participants and interviews with nonparticipants; (3) a cross-sectional survey to assess factors associated with participation and links to social isolation, loneliness, and social connectedness; (4) face-to-face interviews with survey respondents screened at risk for loneliness. Methodological recommendations are provided to guide future collaborative research with local authorities, program developers, and administrators, aimed at minimizing social isolation and loneliness among older people. These include the need for clear communication and documentation of mutually agreed research objectives and responsibilities from project initiation to completion, identifying and working with local agencies to maximize recruitment among “hard to reach” groups, understanding the dimensions of loneliness addressed in the selected instrument used to screen for loneliness, and integrating innovative data collection techniques when working with vulnerable groups such as socially isolated older people.
Ferlatte, O., Karmann, J., Gariépy, G., Frohlich, K. L., Moullec, G., Lemieux, V., & Hébert, R. (2022). Virtual Photovoice With Older Adults: Methodological Reflections during the COVID-19 Pandemic. International Journal of Qualitative Methods. https://doi.org/10.1177/16094069221095656
Abstract. Photovoice is a participatory action research method in which participants take and narrate photographs to share their experiences and perspectives. This method is gaining in popularity among health researchers. Few studies, however, have described virtual photovoice data collection despite the growing interest among qualitative health researchers for online data collection. As such, the aim of this article is to discuss the implementation of a virtual photovoice study and presents some of the challenges of this design and potential solutions. The study examined issues of social isolation and mental health among older adults during the COVID-19 pandemic in the Canadian province of Québec. Twenty-six older adults took photographs depicting their experience of the pandemic that were then shared in virtual discussion groups. In this article, we discuss three key challenges arising from our study and how we navigated them. First, we offer insights into managing some of the technical difficulties related to using online meeting technologies. Second, we describe the adjustments we made during our study to foster and maintain positive group dynamics. Third, we share our insights into the process of building and maintaining trust between both researchers and participants, and amongst participants. Through a discussion of these challenges, we offer suggestions to guide the work of health promotion researchers wishing to conduct virtual photovoice studies, including with older adults.
McGrath, C., Molinaro, M. L., Sheldrake, E. J., Laliberte Rudman, D., & Astell, A. (2019). A Protocol Paper on the Preservation of Identity: Understanding the Technology Adoption Patterns of Older Adults With Age-Related Vision Loss (ARVL). International Journal of Qualitative Methods. https://doi.org/10.1177/1609406919831833
Abstract. There are a growing number of older adults with age-related vision loss (ARVL) for whom technology holds promise in supporting their engagement in daily activities. Despite the growing presence of technologies intended to support older adults with ARVL, there remains high rates of abandonment. This phenomenon of technology abandonment may be partly explained by the concept of self-image, meaning that older adults with ARVL avoid the use of particular technologies due to an underlying fear that use of such technologies may mark them as objects of pity, ridicule, and/or stigmatization. In response to this, the proposed study aims to understand how the decision-making processes of older adults with ARVL, as it relates to technology adoption, are influenced by the negotiation of identity. The study protocol will justify the need for this critical ethnographic study; unpack the theoretical underpinnings of this work; detail the sampling/recruitment strategy; and describe the methods which included a home tour, go-along, and semistructured in-depth interview, as well as the collective approach taken to analyze the data. The protocol concludes by examining the ethical tensions associated with this study, including a focus on the methods adopted as well as the ethical challenges inherent when working with an older adult population experiencing vision loss.
Oostlander, S. A., Champagne-Poirier, O., & O’Sullivan, T. L. (2022). Media Portrayal of Older Adults Across Five Canadian Disasters. The International Journal of Aging and Human Development, 94(2), 234–250. https://doi.org/10.1177/00914150211024173
Abstract. We conducted a constructivist grounded theory approach in which discourse analysis was used to explore how Canadian news media portrays older adults and aging in a disaster context. We analyzed 119 articles covering five Canadian disasters and identified four themes: (a) stereotypes of older adults are presented on a positive–negative continuum in journalistic coverage of disasters, (b) journalistic coverage tends to exclude perspectives of older adults from relevant discourse, (c) journalists assess the value of losses for older adults—“home” as a central concept, and (d) disasters are framed as disrupting retirement ideals. A model was created to provide an overview of the journalistic coverage of older adults in disaster contexts. Understanding how old age and aging are presented by the media in a disaster context is important because it has further implications for informing and structuring disaster risk reduction policies.
Platzer, F., Steverink, N., Haan, M., de Greef, M., & Goedendorp, M. (2021). The Bigger Picture: Research Strategy for a Photo-Elicitation Study Investigating Positive Health Perceptions of Older Adults With Low Socioeconomic Status. International Journal of Qualitative Methods. https://doi.org/10.1177/16094069211040950
Abstract. Research focussing on older adults of low socioeconomic status (SES) faces several methodological challenges, including high rates of non-response and drop-out. In addition, older adults of low SES tend to be less willing to participate in research and are more likely to experience cognitive impairments and literacy problems. Photo-elicitation studies do not require high levels of literacy, and they might therefore be suitable for use in research with older adults of low SES. To date, however, little is known about setting up such studies with this target group. Our aim was to demonstrate how we systematically set up a researcher-driven photo-elicitation study to generate greater insight into the positive health perceptions of older adults of low SES. Our strategy consisted of three phases: development, testing and execution. In this article, we discuss each step of the research strategy and describe the limitations and strengths of our study. We also formulate recommendations for further research using photo-elicitation methods with this target group. Based on the results of this study, we conclude that the use of researcher-driven photo-elicitation is a powerful tool for enhancing understanding with regard to positive health perceptions and experiences of older adults of low SES. The usefulness of the method is particularly dependent on the careful development and testing of the study.
Rivero Jiménez, B., Conde-Caballero, D., & Juárez, L. M. (2021). Loneliness Among the Elderly in Rural Contexts: A Mixed-Method Study Protocol. International Journal of Qualitative Methods. https://doi.org/10.1177/1609406921996861
Abstract. Loneliness among the elderly has become a pressing issue in Western societies. In the Spanish context, the problem of the so-called “empty” Spain disproportionately affects this population group—elderly individuals living in rural areas with low population density, and therefore at higher risk of social exclusion and isolation. We introduce here a mixed-method, quantitative-qualitative research protocol, triangulated with technological tools, designed to improve both data acquisition and subsequent data analysis and interpretation. This study will take place in a rural locality in the Extremadura region (Spain), chosen according to a particular socio-demographic profile. The De Jong Gierveld Loneliness Scale will be used on a cohort of 80 people over 65 years old. Within this cohort, a smaller sample of 20–30 individuals will be selected for semi-structured interviews about their beliefs and experiences of loneliness. Finally, data gathered from technological tools (smartbands, Bluetooth sensors) will allow us to monitor social interactions and to map daily loneliness/interaction patterns. Data will be triangulated by analyzing and comparing the empirical material gathered through these different methods and tools. Strict adherence to ethical standards for data protection and handling will be essential through data collection and analysis. As well as providing insights into the phenomenon of loneliness in old age, the use of different methods and tools for data collection will provide the basis for an epistemological reflection on the scope and limits of each one of these methods.
Woelders, S., & Abma, T. (2019). Participatory action research to enhance the collective involvement of residents in elderly care: About power, dialogue and understanding. Action Research, 17(4), 528–548. https://doi.org/10.1177/1476750319837330
Abstract. The collective involvement of patients and clients in health care organizations is valued in our Western society. In practice, giving form to this involvement seems to be a complex process. In this paper we present our learning experiences with a process of enhancing the involvement of older people in a residential care home in the Netherlands, by using a participatory action research approach, called PARTNER. This approach is inspired by responsive evaluation and developed for the context of long-term care. We use concepts of Habermas’ theory to understand what happens when trying to create communicative spaces through dialogue. Our learning history shows that the involvement of residents is not an easy task, because power issues are at stake. System values seem to dominate the lifeworld and expert knowledge seems to be more valued than expressed emotions and narratives of residents. Researchers who use participatory action research must be aware of these issues of power, often hidden in language and discourse. Dialogue can be a vehicle to enhance mutual understanding, when attention is paid to underlying values, assumptions and meanings of all people. Then, the gap between system and lifeworld can be bridged and communicative spaces can be opened up.
Informed consent is the term given to the agreement between researcher and participant. In this post Janet Salmons offers suggestions about the intersections of the Internet communications, ethics and participants.